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	Podcast:		RNZ: Our Changing World
	Episode:		Neurogenetic conditions in Aotearoa
	Category:		Science & Medicine
	Duration:		00:26:32
	Publish Date:		2023-06-28 17:00:00
	Description:		In September 2022, two New Zealand patients became the first in the world to participate in a phase 1 clinical trial testing a new therapy for a rare neurogenetic condition called myotonic dystrophy. Claire Concannon learns about the trial, and how a new Neurogenetic Registry and Biobank covering 70 conditions is helping to connect New Zealand patients with international research.
	Total Play:		0