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Home > Sickboy > Fighting IFAP Syndrome with love and Capoeira
Podcast: Sickboy
Episode:

Fighting IFAP Syndrome with love and Capoeira
Category: Health
Duration: 00:54:45
Publish Date: 2021-06-28 04:10:00
Description: Sapo and Lorena are the loving parents of little Nauê. Nauê was born with Ichthyosis follicularis, alopecia, and photophobia AKA IFAP syndrome. An extremely rare condition with a shortened life expectancy. Caring for a chronically ill child can be draining. But Sapo and Lorena have found a way of coping with the stress and connecting to their roots. Capoeira, a playful mix of martial arts and dance from their homeland, which they have immersed their son into to encourage play, love and courage.
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