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Home > Futuresteading > Claire Riley - living like tomorrow matters with a diagnosis of MS


	Podcast:		Futuresteading
	Episode:		Claire Riley - living like tomorrow matters with a diagnosis of MS
	Category:		Society & Culture
	Duration:		00:46:54
	Publish Date:		2021-10-31 19:00:00
	Description:		Clare is so much more than her MS diagnosis but when she contacted us, eager to share how living like tomorrow matters plays out after a diagnosis, we realised we never considered her perspective on the show and in that, our privilege became acutely apparent. 40% of Australians have a chronic illness yet so often it goes unacknowledged Show Notes Suburban childhood that was filled with camping and hiking trips that set her up for an outdoor life Finding her people at Wollangarra What is Wollangarra and how it defined her life Getting a diagnosis of MS Taking multiple years to accept her diagnosis Needing more words for pain to describe what life with MS is like Living like tomorrow matters for those with a life long health diagnosis Why its not always possible to make big moves on sustainability actions If I can grow and eat a tomato plant from seed - that’s a huge achievement Getting a teaching degree for the single reason to work at falls creek primary school Redefining herself as someone with a diagnosis I’m still the same person I was, I just have another chapter Women are more likely to be diagnosed so the way MS is communicated is very story-like Looking after yourself with MS is a full time job Not having the luxury of ignoring self care needs Fitting in the necessary exercises around the every day needs Embracing being in the cold - swimming every day in the Melbourne bay Being hopeful because of the way her son responds to the world around you Success sits in daily satisfaction and making a difference to all things big and small, moment to moment The value of giving yourself a break - Go gently Take one step - you don’t have to do all the things The open arms of the MS community which encourages conversation, open grief and removing shame 40% of the population have a chronic illness but we are so shamed by this that we don’t talk about it publicly People with disabilities are not necessarily ignored but they are often not seen Planning her days around her health but not wanting to live like its all there is References Wollangarra MS understood Thanks to our podcast partners: Wwoof Australia Nutrisoil Buy the Book Futuresteading - Live Like tomorrow matters Support the show (https://www.buymeacoffee.com/futuresteading)
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